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Occupational therapy for epidermolysis bullosa: clinical practice guidelinesChan, Jennifer M.; Weisman, Amy; King, Alex; Maksomski, Susan; Shotwell, Carrissa; Bailie, Claire; Weaver, Helen; Bodan, Rebecca; Guerrero, Estrella; Zmazek, Matija; Khuu, Phuong · Orphanet Journal of Rare Diseases · 2019