End-of-life measures in Huntington disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning

Carlozzi, Noelle E.; Boileau, Nicholas R.; Paulsen, Jane S.; Perlmutter, Joel S.; Lai, Jin-Shei; Hahn, Elizabeth A.; McCormack, Michael K.; Nance, Martha A.; Cella, David; Barton, Stacey K.; Downing, Nancy R.

期刊名称Journal of Neurology
作者Carlozzi, Noelle E.; Boileau, Nicholas R.; Paulsen, Jane S.; Perlmutter, Joel S.; Lai, Jin-Shei; Hahn, Elizabeth A.; McCormack, Michael K.; Nance, Martha A.; Cella, David; Barton, Stacey K.; Downing, Nancy R.
印刷ISSN0340-5354
电子ISSN1432-1459
文件大小793.13KB
发表时间2019-6-12
DOI10.1007/s00415-019-09417-7

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End-of-life measures in Huntington disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning